One of my biggest accomplishments is learning to live independently. However, I can only do this...
I'm so happy you're here!
One of my biggest accomplishments is learning to live independently. However, I can only do this...
My rare disease story is long and complicated, but to do it justice, I have to go back to 2011,...
In February of 2023, the FDA approved the first ever treatment for Friedreich's ataxia, SKYCLARYS....